Wow, the difference a few days makes! On Monday Aaron was doing so poorly that I was crying when I pulled up to the clinic and the valet parking attendant (whom I know well) was giving me a hug and telling me he would pray for Aaron. He looked and felt terrible! Today, he is like a different boy! We did go to the clinic for platelets yet again, but his body is holding on to more of them and he isn't getting as low. They found out that his stomach issues were due to two viruses that were finally isolated in testing but those have pretty well run their courses. He has been playing and having a good time, and tonight he even went in the backyard and played "chair basketball" with his cousin Jason and Ben. What a good time we all had! He is eating chips right now (yea) and still feeling good after a long day.
A big thank you to anyone that has ever donated platelets. They are lifesaving to Aaron and he has needed so many transfusions. Blood donors are the unsung heroes to so many children!
MD Anderson should have all of Aaron's file and imaging discs by Monday then we can proceed. The hospital social worker is working on getting Angel Flight if Aaron is required to go as he can't fly commercially. Makes me a little nervous, but they tell me it's safer than driving! Hopefully we can get there soon so we can make these decisions.
Take time this weekend to enjoy loved ones and relax!
Barbara
Aaron playing with a new toy
Nana and Mommy entertaining Aaron during his clinic appointment