I got a call with the results from the bone marrow biopsy today, and there is no cancer (they didn't expect to see anything) and the bone marrow is stable for being 90 days post-transplant. She said it is at 50%, which is ok and he won't need another infusion of his cells. His liver enzymes are still slightly elevated so they will continue to watch to see why and if it continues. We will start going every two weeks now for labs, and hopefully later this week I will get his physical therapy schedule.
Ben is still in the midst of his evaluations at Phoenix Children's. It was a little hard today to see the areas that he is just not even on the same page as most two year olds. We finish that up on Saturday, and then should be able to get a plan to start him on some sort of program.
Please pray that they will figure out what is going on with Aaron's liver enzymes and that it will be a simple thing, and that I will get a good plan and program to help Ben with his communication.
Thanks!
Barbara
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For I know the plans I have for you, declares the LORD, plans to prosper you and not to harm you, plans to give you hope and a future. Jeremiah 29:11
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- Team Aaron
- On August 27th 2008 we noticed that Aaron's leg appeared swollen. Within days he was diagnosed with metastatic Ewing's Sarcoma with the primary site in his left femur and tumors in both lungs. Soon he started a very aggressive chemotherapy regimen. He has finished 7 rounds of chemo and a resection of his femur, and now is undergoing a stem cell transplant. His own stem cells were cancer-free, so they were harvested and put back into his body after a very intense week of chemo that is meant to obliterate his bone marrow. Despite it all he has charmed his nurses and everyone at Phoenix Children's Hospital, and he continues to grow and thrive even when we were told he wouldn't. His prognosis is good, and he is a fighter!