As our Christmas festivities come to a close I just wanted to say Merry Christmas! There is no comparison between this year and last year. Last year Aaron was in the hospital on Christmas and I was pretty much a wreck! It was a pretty bad couple of days to say the least. I was just reading an update Damon did last year on New Years Day, and at that time Aaron's pain was unmanageable and we were so worried about the operation on his leg. What a difference a year makes! He has absolutely no pain, and doesn't even remember when he did. This time last year I couldn't imagine life being normal, yet today was a very normal day all things considered. Aaron got a Wii for Christmas from his "Nonni", and he was playing Wii and laughing and playing like nothing had ever happened. What a wonderful gift! We made animal-shaped cookies for Santa last night, and Aaron was so excited to get the stuffed Beluga whale he has been asking for.
It is still a little surreal at times what happened this past year, and there are times that even though things are great there is sadness. I think those of you who have gone through this with a child know what I mean, but it is hard to explain why there could be sadness even though things are good. That is why I am glad to have my online Ewing's support group - everything is understood. I am so thankful and happy for how well Aaron is doing, but I guess part of me is changed forever from the experience and living with the fear of recurrence. It's not bad necessarily - just different.
Tomorrow is another day of celebrating with my side of the family, and I am so happy for another fun day with family. I know it is a bit of a cliche, but I am trying to remember that Jesus is the reason for this season, and to spend a bit of quiet time in the midst of the hustle and bustle to remember what He has done in my life. We are so very thankful to all of you for your prayers and encouragement through this journey!
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For I know the plans I have for you, declares the LORD, plans to prosper you and not to harm you, plans to give you hope and a future. Jeremiah 29:11
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- Team Aaron
- On August 27th 2008 we noticed that Aaron's leg appeared swollen. Within days he was diagnosed with metastatic Ewing's Sarcoma with the primary site in his left femur and tumors in both lungs. Soon he started a very aggressive chemotherapy regimen. He has finished 7 rounds of chemo and a resection of his femur, and now is undergoing a stem cell transplant. His own stem cells were cancer-free, so they were harvested and put back into his body after a very intense week of chemo that is meant to obliterate his bone marrow. Despite it all he has charmed his nurses and everyone at Phoenix Children's Hospital, and he continues to grow and thrive even when we were told he wouldn't. His prognosis is good, and he is a fighter!